Saturday 3 December 2016

My Mother's Depression.

I have just woken up, trying to remember the exact words my therapist said to me before she ended our Facetime call. You can't control it and you can't fix it. Remember that.
Yes, my therapist and I are terribly modern. We don't do actual visits any longer. Now that I am so transient and never know which city I will be in from week to week, it's easier to arrange an evening FaceTime call than try and make it up to Covent Garden.
 My
therapist and I have an interesting client/patient relationship. I began seeing her about 6 years ago when I began having debilitating panic attacks. A friend of mine had studied under her at university and said she was truly inspiring, so I looked her up and voila, my therapy sessions began.

Of course, as anyone that has had therapy knows, you think you are going in to sort out one problem but you actually end up talking about a whole stream of other issues. We never really got to the bottom of the panic attacks but we did start talking about some major things that had happened in my life. Things that may be affecting my behaviour now. And it has helped me beyond my imaginings. Six years on, I now only see or talk to her when I'm on the precipice. This is what I call my moment when I am so stressed or unhappy or out of control that I feel as if I'm on the edge of a cliff, about to fall (or throw myself) off. I have these moments every few months and immediately call her and arrange an appointment. 

We have been talking, recently, about my mother's depression. My mother has clinical depression. It used to be called manic depression but now it is labelled bipolar. I think it's too simple a label for what she has. From memory, I can only recall two moments in her life, up until now, where she has shown signs of depression. The first time was when I was 17, and I remember her suddenly going very quiet, losing lots of weight had sleeping all the time. It lasted about 3 months. She wouldn't leave the house much and couldn't make decisions. She looked terribly sad and couldn't explain it or figure out what had suddenly triggered it. The second time was on her 50th birthday. We were living in America and we had arranged a small surprise party for her. I went upstairs to try and hint what she should wear that evening and she clicked that there was going to be a party. Something snapped inside her. What would usually have been a good surprise and joy at her seeing her old friends suddenly overwhelmed her. She sank to the floor and burst out crying. She refused to get dressed or move and sat there the whole evening. That depression also lasted a few months. 

Fast forward 20 years to a few months after her 70th birthday. She began to go down. It didn't manifest the same way as before though... looking sad and sleeping loads, it carried on going down, deeper and deeper. She refused to eat and would sit there with a haunted look in her eyes, shaking and rocking, unable to speak or voice what she was feeling. She didn't sleep, she wouldn't leave the house. She hid. We got an army of help. Her doctor referred her to a specialist who got a therapist and a psychotherapist and she was looked after. The doctor tried different drugs and we tried to keep her eating and doing small amounts of exercise. But it's not a science and you can't give depression a pill and a hug and make it go away. It takes months and months. of trial, error and the most enormous amount of patience. I honestly thought she would never come back from it. She had lost so much weight that she aged 10 years. She would then pull at her skin and cry out at how wrinkly she was, not understanding that the weight loss had caused it. Even her own vanity wouldn't convince her to eat. My beautiful and beautifuly healthy , vivacious, brilliant, chatty, smiley, extrovert mother, disappeared overnight.

There is no rational with depression. You can't explain what the noises are that she is hearing, or try and make her smile. You can't stop the birds flapping, or the neighbour's dog wagging its tail. You can't stop the postman coming to the door or the telephone ringing. We would find her at 4am with a 100 incontinence pads laid out on the floor because she was convinced she was going to wet herself. She never did. It is exhausting and aging, not just for my mother but for the family, my father especially being primary carer. But Dad is another story... a staunch traditionalist who believes mental illness is weakness and shouldn't be talked about. That certainly hinders things. 

It is now 5 years later and my mother has had 5 bouts of depression (one a year lasting 3-4 months). Each one manifests slightly differently, but each time, the downward spiral is less severe. This is what the doctors hoped for with their cocktail of pills and therapy, that each depression would get milder, that each manic period (her high following the depression) would be shorter too. This last bout, however, has lasted since April. It has been more anxiety and less full blown depression. But she hasn't laughed or smiled since then. 7 months without hearing your mother laugh. 7 months of seeing her shrink (you cannot force someone to eat no matter what anyone tells you). She is only 75 but she looks 90. She is grey in pallor, hunched over and so frail, like a tiny bird who's bones might break if you squeeze them too hard. She refuses to change her clothes and wears the same outfit for a week at a time (thank god she does change her underwear though) she smells slightly stale and her hair is greasy. She has a bath every night but it is so quick I cannot imagine anything really gets washed that well. And the worse thing is that I cannot bear to hug her. It's like hugging a dying child. Spindly arms legs and shoulders. Her head is too big for her body and she shuffles around in her oversized clothes and unwashed dressing gown. If I dare to suggest she changes her clothes or I wash her hair for her, my father tells me to shut up. He won't let me talk to her when he's around. He won't let me talk about her depression or ask her how she is feeling. I am metaphorically gagged. I might as well be in Saudi Arabia because I have never in my life felt so helpless and unheard and terminated. I have only ever been able to express myself with words but when I am no longer allowed to speak then what else can I do? 

My therapist says that I have to concentrate on being there as a support when they need me, offering my help as often as possible, but not trying to fix them. I cannot fix them. I can only fix myself and the way I react to them and the situation. She says I must try and not control their lives. I end up wanting to punish my mother for being ill and I want to punish my father for being so stupid, ignoring the situation. I say mean things because I'm so upset. I see her stand on the scales, see her weight drop by another pound a week and say it's disgusting, that she's like a skeleton, as if shocking her might trigger something! Instead she then sits there looking at her feet like a wounded animal and then I hate myself and feel like shit, feel like a horrible school bully, and lock myself in my room and don't speak to them for the rest of the day because I fear what will come out of my mouth. 

I have to just stop. I know that, given the chance, I would do everything differently - taking mum for therapy everyday, making her change her clothes and wash her hair on a daily basis, make her eat more and try and encourage her to take more care of herself. I've just realised I've used the word 'make' several times. I actually cannot make her do anything because then I would be the control freak and not my father. By ignoring the situation my father is not helping. By refusing to talk about it, does not make my mother's depression go away. Yet I am unable to change it. I cannot control it and I cannot fix it. And the sooner I understand that, the better.

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